December 2017 Update: Ministry, Health and Family

MINISTRY AS ACCTS STAFF MEMBERS IN 2017

Busy year of ministry for both of us
This year has been yet another busy year as far as ministry as an ACCTS staff member is concerned. Although this brief update focuses on Noel, we are a “husband and wife” pair as staff members. Meryl has been involved throughout the year coordinating very beautiful and sacred quilts from Quilts of Valor which we present to combat Veterans the first time they come to the Welcome Home Initiative© (WHI©). Her ministry includes praying over each quilt (which are publicly blessed at a prayer and worship service shortly before each retreat begins), praying for each Veteran coming to the retreat.

At the female combat Veterans retreat in April, we heard and prayed much about issues of sexual trauma, oppression and lack of equality and from the reactions of each one of these precious women, there was considerable healing. It seems that as someone receives the Peace of the LORD that the presence of Jesus in our lives brings contentment, patience, calmness, strength, hope, encouragement and much more in our lives. Those who receive it are hugely helped.

Veterans Healed at Retreat
We organized and led a second retreat in November, which was also extremely successful, according to the parting comment of those who attended. Twenty male Veterans, six spouses and two other ladies with extensive military backgrounds came to the SLC from November 13-15. Our team included former Army and Navy Chaplains. During the retreat we were blessed to honor one of our most stalwart team members who died during the summer, instituting the “Ken Bliss Welcome Home Initiative Scholarship Fund” through which donors can “pay it forward” enabling Veterans to come to the next retreat.

Chaplain Ministry with ACCTS and ACNA
As most of you know, I was commissioned as a Lay Chaplain four years ago and am endorsed by the Bishop of the Armed Forces of the Anglican Church in North America. This appointment is totally integrated with my ACCTS staff role, giving the Chaplains & Veterans ministry added credibility. In addition to helping to plan, organize and run a training academy in the summer for three new Lay Chaplains, I am also responsible for some of the pastoral care of the 12 chaplains currently commissioned at the moment. Most of these chaplains are involved in ministering to Veterans, several of them in full time employment. We are organized into an open spiritual order called the Order of St. Martin of Tours, of which I was appointed Prior in 2014.

In Between Retreats
In between WHI retreats I spend my time helping Meryl with the ‘after school’ care and their activities at the YMCA. (sometimes all day care) of our two beautiful granddaughters Charlotte (10) and Lucy (7) because Toby and JoAnn both have full-time jobs; organizing the next retreat including advertising and fund-raising (at least $10K per retreat); and maintaining contact with military Chaplains and Veterans in a variety of ways especially one-to-one social media outlets. We also attended the annual ACCTS staff meeting during which I was able to co-lead a worship service ministering the Communion from the Reserved Sacrament, which was extremely well received by the 60 staff present. To relax, I tend to watch our local ice hockey team play and also watch the English Premier League games of the TV.

Health update
Noel’s health has been as good as it ever was before the stem cell transplant 5 1/2 years ago, although at 71, age creeps on. Its been a very good year! This was confirmed by both doctors at the Dana Farber Cancer Insitute and the Brigham and Women’s, although Noel continues to have effects of the Graft Verses Host Disease (GVHD) they are very pleased with his continued good health and his next check up appointments are scheduled in 6 months, June 2018. Meryl continues to manage her Diabetes and tries to pace herself and keep healthy as she too finds age creeping on.

FAMILY NEWS

The Dawes Family

AT ALNWICK CASTLE, NORTHUMBERLAND, JULY 2107 – Left to right: Sarah and Charles, Noel and Meryl, Lucy in Toby’s arms, JoAnn on right. To Meryl’s right are Eve, William and Charlotte on right.

Our family has been extremely busy in 2017
Charles, Sarah, Eve and William continue to live in north east England. The children are doing well at school. Eve has developed an interest in climbing and William is a keen soccer player. Toby, JoAnn, Charlotte and Lucy are about 3 miles away from us near Glens Falls, NY (in the beautiful North Country of New York State on the edge of the Adirondack (National) Park. Their children are also doing well at school. Charlotte has advanced to the next level in gymnastics and Lucy enjoys swimming.

Very happy visit to England
For Meryl and me the best and happiest event of the year was in July, to have our family together in one place for a week for the first time in 3 years. We took Charlotte and Lucy to England for a month in the summer, staying in the north east to whole time so the four cousins could really get to know each other. Toby and JoAnn joined us for the week. Meryl’s niece, Louise, brought her daughter, Maisie, up for two days and the five children enjoyed their time together.

Blessings of marriage and blessings of the season
We are blessed to be celebrating our 47th wedding anniversary just before Christmas.

We thank you for all you prayers, support and love. And we wish you a blessed Christmas and a happy, healthy and peace filled 2018.

“And suddenly there was with the angel a multitude of the heavenly host praising God, and saying, Glory to God in the highest, and on earth peace, good will toward men.”

Noel’s 5th Birthday

Happy 5th Birthday

June 11th will soon be here… It’s Noel’s 5th re- Birthday!!! Five years ago on this day he received the gift of new life. Stem Cells donated by an unrelated donor, who we now know was a young man named Ryan, to whom we will be forever grateful, a true hero, his unselfish gift saved Noel’s life after being diagnosed just over 6 years ago with a rare form of bone marrow cancer, for which there was no medical cure.

There are many others far too numerous to mention all by name, who were there for us and still are. The Medical teams at the Brigham and Women’s Hospital and the Dana Farber Cancer Institute both in Boston and the CR Wood Cancer Center in Glens Falls. Our family and friends who have always been there for us in so many ways. And we are eternally grateful to God for all our answered prayers. His faithfulness and his mercy are new every morning and His Peace that passes all understanding.

Those who have followed Noel’s story posted here in the journal updates know it has been quite a ride at times. With many ups and downs but here we are celebrating a 5th birthday and it’s 6 months since Noel saw his doctors in Boston, life is good. The GVHD (Graft versus Host disease) that Noel has had since the transplant still from time to time rears it’s head. Making life uncomfortable for Noel with mouth sores. But he takes all his medications and these periods come and go. Life is pretty normal whatever, of course, normal is?

We will be back in Boston this coming week. Noel has appointments with both his doctors, we hope that they will be satisfied that all is well and that Noel won’t have to see them again until December.

We will be home from Boston just in time to be at the Greenwich Relay for Life on Saturday 10th June. This is always a special event for our family. I’m a cancer survivor, Noel is a cancer survivor, and our eldest granddaughter Charlotte, now almost 10 years old, is also a cancer survivor… Every year we try to pay it forward to help others… As they go through the trials and tribulations of fighting cancer. Raising funds for the American Cancer Society who do so much, we know because they have helped us personally so much. Providing ‘free’ to us accommodation in Boston at their amazing Hope Lodge. Saving us thousands of $$$ in hotel bills for the many, many times we have been to appointments at the DFCI and B&W’s over the past 6 years.

Our fund raising is channeled through Charlotte’s Relay for Life page…
http://main.acsevents.org/goto/Charlottegymnast

If you can help us to pay it forward please make a donation here.

And check this site for updates of our visit to Boston this week and photos of us celebrating life and standing with those who fight and remembering those who fought but lost their fight at The Relay for Life…

Thank you! Meryl, Noel, and Charlotte.

Relay for Life 2017

Relay for Life - Celebrate HopeLess than 30 days to go until this year’s Relay for Life on Saturday, June 10th, and we once again are as a family are trying to “Pay It Forward” so others can benefit from the American Cancer Society as we have done. I will be a 9 year Cancer Survivor this year, and no longer need checks. Noel will celebrate the same weekend as we take part in the Relay, 5 years of being cancer free after his Stem Cell Transplant, back in 2012. Noel is now on 6 month review appointments. Charlotte this year celebrates being cancer free for 8 years, she is on annual review appointments.

Fighting cancer may be the toughest job you ever have to do. The disease can hit you on multiple fronts – the cancer itself, the treatments used to fight it, and the side effects of those treatments. Stress also comes on many levels. The American Cancer Society is there to help you cope on many levels.

A huge thank you for supporting Charlotte in her previous efforts to raise funds for the work of the The American Cancer Society, who are a nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer through research, education, advocacy and service. Our family has received a huge amount of support from their services. The American Cancer Society is also fully committed to their obligation to spend donor dollars wisely. And I believe they do.

This year, Charlotte wrote this:

My name is Charlotte Emma. I’m 9 years old, turning 10 in July. I’m a gymnast and a CANCER SURVIVOR!

Please help me to help others to be CANCER SURVIVORS.

I’m raising money for Relay for Life. This year will be my 7th Relay for Life.

If you would like to help Charlotte in her effort this year please visit her page at http://main.acsevents.org/goto/Charlottegymnast

The Relay for Life event that Charlotte and her team HEARTS of HOPE participate in takes place the first week of June 2017 in Greenwich, NY. If possible we would like all donations in by the 1st of June.

2015 Greenwich Relay for Life

Noel, Meryl, and Charlotte
2015 Greenwich Relay for Life

If you would rather send a check directly to us, please make out to The ACS Relay for Life and on the memo line write Charlotte Dawes, Greenwich, NY. Please message us for our address where to mail your donation.

Many thanks,

Charlotte, Granny Meryl and Poppa Noel, The Relay Trio

Christmas Update 2016

We meant to add this update from December 9, 2016 to this page ages ago, but somehow that got lost in the mists of time! Here it is now! Enjoy – if you take the time to read it.

We are thankful and blessed by this great news… Journal entry by Meryl Dawes — 12/9/2016

“Great is Thy Faithfulness, Great is Thy Faithfulness, morning by morning new mercies we see.”

It’s over 5 and a half years since we were told Noel had a rare bone marrow cancer and would need a Stem Cell Transplant to have any chance of survival and now 4 and a half years since Ryan, seen here with Noel, an unrelated donor made the life saving gift of his stem cells. Since then we have seen some ups and downs in the journey to put it mildly. With many, many trips to Boston to see the doctors at the Dana Farber Cancer Institute and Brigham and Women’s Hospital, who have been so brilliant, we moved from weekly visits, biweekly, triweekly, monthly through to 3 months. On this week’s visit both Noel’s doctors independently were so pleased with his health that they don’t want or expect to see him for 6 Months!!!

So we won’t be back here in Boston until June 2017. Noel will stay on his present medications and we hope and pray he will have no relapses to bring us back earlier. It will continue to be a journey for the rest of Noel’s life, a very, very long journey we hope as the doctors have said they will always need to have him check in with them.

But we give thanks and rejoice at this latest progress as we move forward. Every day grateful to God, the doctors in Glens Falls and Boston and of course Ryan.

 

Thank you all for all your prayers, love and support over the years. Please rejoice with us and give thanks. Please continue to pray for Noel’s health to continue to be good, for no regression and for the GVHD that Noel has from the transplant to disappear all together or at very least stay as manageable as it is now.

Noel and I celebrate our 46th Wedding Anniversary on December 20th. We aren’t ones for big celebrations but we are so grateful that we have been blessed with so much. Like all partnerships we have had our ups and downs and some stormy seas. But we give thanks for our lasting love for each other, our friendship, our family and our friends.

Christmas as is coming and we wish you much JOY. He is the real reason for the season and the greatest gift we will ever receive. And best of all it’s free. ❤ Merry Christmas and a Happy New Year to you and all those you love and pray for. Watch this his space for more updates of our family and ministry and please do keep in touch with us.

Then added the latest photo of Noel and myself. Taken this past summer. We need a better one as Noel being off steroids since the end of August has lost that chubby face and looks more like himself again.

Merry Christmas, from a snowy Glens Falls, Meryl and Noel

As the Colours Change and the Nights are Shorter…

The LORD is trustworthy in all he promises and faithful in all he does.” – Psalm 145: 13b (NIV)

Long over due update… but no news has been good news. All is well!

Eating Kipper Sandwiches in England

Eating Kipper Sandwiches in England

But why does the summer always go so fast? Because it’s so much fun… yes, our summer was great fun. The highlight being our month long trip to England to see family and friends for the first time in 18 months. We give the Lord great praise that we had great travel, wonderful weather, stayed healthy, and saw 22 family members, 8 friends and Noel attended the 50th anniversary of his time at the Royal Military Academy, Sandhurst. We spent wonderful quality time with our grandchildren Eve and William, both close to home and at the seaside. The cottages we rented and the B&B we stayed at were all lovely. We ate lots of the English food we miss from kippers to tea cakes.

Meryl on crutches

Meryl on crutches

Towards the end of our visit I, Meryl, had an unwanted highlight with a trip to the local medical center and then the hospital. I damaged the meniscus of my right knee getting out of a boat. I came home on crutches and was rushed to the front of all the lines at the airports in a wheel chair. We got upgraded seats and everyone was very kind… but I don’t recommend the injury! Although it is now much better, it’s been no fun and quite frustrating.

Back home we have been catching up with Charlotte and Lucy. It’s back to school last week, 1st and 4th grade – time goes very quickly. We will be back doing after school care 3 days a week. This will include homework, gymnastics, dance, and swim lessons for 2 very busy girls. Only wish we had half their energy!! As life is always busy.

We have been blessed to be able to carry out much ministry this year, even though funds are just over $1,000 behind on the extra support needed for 2016’s larger budget that we started praying for last Fall/Autumn… please pray for the ministry needs to be met.

In March, Noel helped lead a Lay Chaplains training and in April ministered one-to-one with several active duty Chaplains at the annual Anglican Armed Forces Jurisdiction (diocese) convocation. In June, Noel helped Rev. Nigel Mumford (as his “right hand man”, as Nigel says) with a very successful Welcome Home Initiative (WHI) war zone Veterans retreat in Florida. The next weekend we gave two presentations about WHI at the Albany Diocese annual convention and, as part of the healing prayer team, prayed with numerous needy people. The following weekend after that, we organized and led a training workshop for 18 people who wanted to learn more about how to pray effectively for the inner healing of war zone Veterans and First Responders. After all that we felt we needed the break in England that Meryl talked about above!

The UK break behind us, this past weekend Noel was back into ministry with a trip to Alabama. He has written separately about this second Academy for 2016 on CaringBridge, www.supportnoel.org/news-and-updates/, his Personal Facebook page, and the Support Noel Page. A few of our friends have asked and receive this and other reports directly by email.

We have a busy Fall ahead of us so watch for out updates…

We have a visit to Boston later this month, visits are now every 3 months and we pray that the appointments continue to be well spaced. Noel is very heathy but he is still fighting the GVHD with the horrible mouth sores and occasional digestive tract issues. They are better than last year but please pray they will go away. He does not complain but it’s often miserable for him.

We thank you for continuing to walk with us on our journey and for your encouragement, support, prayers and love.

Please stay in touch with us by email, phone or Facebook. We love hearing from you and knowing how we can pray for you.

May 2016 UPDATE and just a month until the 2016 RELAY FOR LIFE

“Great is Thy faithfulness!” “Great is Thy faithfulness!”
Morning by morning new mercies I see;
All I have needed Thy hand hath provided—
“Great is Thy faithfulness,” Lord, unto me!

Everyday we give thanks to the Lord as Noel is now 5 years past his first diagnosis of the rare bone marrow cancer and almost 4 years post his Stem Cell transplant,which gave him new life..and he is cancer free . For those of you following the story, you know it has been a journey in which we have had to trust the Lord every step of the way and He has been faithful and shown us great mercy… the journey for Noel was often not been easy..and he still has daily issues with the effects of the GVHD..graft verses host disease, mainly with the nasty mouth sores., At the last visit to the oral doctor he was given steroid injections into his mouth and he is still on a low oral dose of steroids and the 4 times a day mouth wash. But he is back to his ‘old self’ and doing lots of ministry again,,,and my role as his caregiver has returned to just that of a wife.

Daily we are thankful that not only is Noel cancer free but i’m 8 years cancer free and Charlotte is 7 years cancer free….. we will again this year be Celebrating this by taking part in the RELAY FOR LIFE at Greenwich NY on June 3rd and 4th, we hope for good weather unlike the rain of last year ( well actually Noel will miss it as he will be ministering to Veterans on a Welcome Home Initiative Retreat ) But Charlotte and I, along with other members of our team HEARTS OF HOPE will be there. we hope to RELAY, ie walk laps around the track through the night..it’s a 6 pm to 6 am event.

In the 4 years since Noel’s transplant we have had more medical appointments at the Brigham and Women’s Hospital and the Dana Farber Cancer Institute in Boston than we can count, but we do know that we have spent in the region of over 200 nights away form home …the American Cancer Society has amazing accommodation available in many areas known as the The HOPE LODGE .and if rooms are available .this saves cancer patients and their caregiver the expense of a hotel, which in a major city it is hard to find for under $150 a night ….so if we had been asked to find in the region of $30,000 for hotel accommodation in the past 4 years..along with all the medical costs ..I have no idea where that money would have come from…but because of the generosity of people who support the American Cancer Society there has been no charge for us to stay at the HOPE LODGE in Boston…

The RELAY FOR LIFE every year is not just a celebration of life.or a time to remember those who’s fight was lost or to support those in the battle but it is a major fund raising event.. we along with many others are raising funds again to help others as we have been helped…

Please if you are able to help us in this, visit Charlotte’s Relay for Life page . http://main.acsevents.org/goto/charlotte-emma where you can make a donation on line or by mail..or you can send a check or money order directly to me and I will do all the paper work for you… our address is 22 Davis St, Glens Falls, NY 12801.. every Dollar makes a difference so no donation is too small and no too big… thank you.

Survivor Trio 2010Here we are at Charlotte’s first RELAY FOR LIFE in 2010 she was the youngest there wearing purple survivor shirt. Me and Charlotte in 2014 ……..the Survivor Trio in 2011 ( actually that was before Noel had his transplant so at that stage he still had cancer but the ACS say you are a Survivor and can wear the purple shirt from the day you hear those awful words “you have cancer’ ……Charlotte in 2014 and our crazy team in 2013 ……
We will update this page again after the Relay with family news and Ministry News…

Thank you and God Bless you for continuing to pray for us and support us..

Time to catch up… First update of 2016

‘This is the day the Lord has made; We will rejoice and be glad in it.’ Psalm 118:24.

They say ‘the older we get the faster time goes…’ I think that is true…

Adirondack Thunder

Meeting Adirondack Thunder players #15 James Henry and #32 Joe Faust at the C.R. Wood Cancer Center in Glens Falls, NY

This is our first update of the new year. I hope it’s not to late to wish everyone a happy and healthy 2016. Thank you all for your many cards and letters during the Christmas Season.

Last year ended on a good note. We had a very happy and blessed Christmas time… along with the mildest, snow free weather in our region for many years. Noel was feeling so much better, but like so many of us, fighting off lingering colds and coughs and a general feeling of fatigue.

Our first visit this year, to Boston to see both Noel’s doctors at the Dana-Farber and the Brigham and Women’s hospitals, a couple of weeks ago was encouraging with a lowering of the steroid again. But the result has been disappointing… with the return of more mouth sores caused by the GVHD that Noel has. This is not only painful but makes eating difficult. So with the Doctor’s agreement he has gone back up on the Steroid dose. And things have settled down again. He sees his Doctor again at Dana-Farber on 24th February, continuing the schedule of visits every 6 weeks.

On our last visit we were able to stay again at Hope Lodge (HL). We had made this booking last year. After almost 4 years the Lodge has become very a familiar place to us. We have stayed over 200 nights there, although we haven’t counted the actual number. Through the generous supporters of the American Cancer Society (ACS), Hope Lodge does not charge for visits although donations are welcomed. This means that cancer patients and their caregivers can stay there regardless of income. This has saved us thousands of dollars in hotel bills. But on January 1st the eligibility rules changed, sadly because people abused the ‘old’ system. ACS now requires a patient to have a doctor’s referral for a minimum of 3 appointments and to stay for a minimum of 3 nights. As Noel usually has only 2 appointments (blood tests and doctor) on his visits we will not be able to stay at HL for those visits. But we will, thankfully, get a medical reduction at a Boston hotel through a special discount arranged by Dana-Farber for their patients. Please pray we will be able to rebalance our tight budget to cope with the increase in expenditure over the year. Thankfully, when Noel sees both his doctors (the next time is April 1st), we will be able to stay at Hope Lodge. We feel so very blessed for this and give thanks to God for his provision. We are so blessed by and thankful for all your prayers and support in so many different ways. Please pray us through this new situation.

Family-wise all is well. Our son, Charles, was recently in Las Vegas from England for the big CES Show. We spoke to him whilst he was on US soil but, sadly, were not able to see him. He’s back home in England now, where Sarah and Eve and William are all doing great… School keeps everyone busy.

Charlotte Gold and Silver

Charlotte Gold on Balance Beam and Silver on Vault

Likewise here in New York’s North Country, Toby and JoAnn are well and working hard. Charlotte and Lucy keep busy with school and their activities at the YMCA. Charlotte recently performed in 3 gymnastics competitions, one of which was held about 150 miles away at Glastonbury, Connecticut. Noel and I were delighted to be able to surprise her and be at the gym there to see her on our way home from Boston. In her age and ability level group (9 girls), she received silver for her Vault routine and gold for the Beam. She was so surprised and pleased she cried tears of joy! Gymnastics is very competitive and Charlotte works hard. She has practice sessions twice a week lasting 2 1/2 hours each time, with the option of doing a third session. She also has a surprising amount of school homework to do so the two sessions are enough, I think. Both girls enjoy their swimming lessons and, for Lucy, swimming is her favorite. Lucy gets extra swimming most Friday’s when she and Poppa Noel swim together whilst Charlotte is in her second gymnastics practice.

Japanese Cherry Blossom

Japanese Cherry Blossom painted at the YMCA

In early January, on a whim, I signed up for an art class at our local YMCA. In a different life before Noel and I were married, I did art and design – but that was over 45 years ago since then I have done nothing in that area. To do so always seemed to be in a different life… in a different world. If I had the time I think I could indulge myself again in this pastime. But life seems too busy most days… But I know I’m going to enjoy the classes!

Noel will now update you on the ministry news… looks like it’s going to be a busy year.

Since the Welcome Home Initiatives finished in November, ministry has been quieter, mostly focusing on planning and early preparations for future events. However, the personal one-to-one ministry with numerous combat Veterans and Chaplains continues face to face and through social media.

I led a review/plan ahead WHI meeting last week, confirming we will carry out our next Retreat at Greenwich from October 31 to November 2. Please mark your calendars now! As a WHI team, we need to raise between $10000-$15000 to give a free retreat to the Veterans who come. This how we thank them for their war service. I’m seeking four or five individuals, churches, businesses or similar who have a heart to help war damaged Veterans, blessing them with a $400 scholarship. Know anyone?

I and a couple of others from NY will drive to Virginia Beach to help Fr. Nigel Mumford’s WHI from November 3 to 5th.

I, probably with Meryl, will help lead another WHI Retreat at The Villages, Florida from June 2-4.

Myself and another Veteran friend plan to help a similar retreat near Fort Campbell, KY in mid-May.

Currently, I, as Prior, am helping my Abbot prepare and carry out a Lay Chaplains’ training Academy in Pelham, near Birmingham, Alabama in early March. This is a major event for the Anglican Armed Forces and Chaplaincy Jurisdiction. The other major ACNA Jurisdiction event is the annual Chaplains’ Convocation in late April. I plan to be there at Mount Pleasant, SC, just across the river from Charleston.

In May, I plan to travel to Virginia Beach for the Annual Board meeting of Olive Branch International who are doing outstanding work in Ukraine. We train non-governmental military chaplains and educate soldiers, chaplains, psychiatric and other medical staff, military wives and others how to deal with traumatic combat stress. These are
urgent, vastly under resourced and huge tasks and it is a privilege to be involved in helping mobilize this indigenous ministry.

Finally, I’d love you to pray for and be involved in three new outreaches which are part of WHI.

First, a new small group of combat Veterans started meeting weekly in Virginia Beach two weeks ago. Inspired and energized by my close friend, Rev. Nigel Mumford, this Combat Stress Recovery (CSR) group has got off to a good start. It is being modeled similarly to an AA group, augmented with inner healing prayer.

Meanwhile, here in the North Country, I’m supporting a combat Veteran friend to get a similar group going. We’ve been working towards this for several months but haven’t yet found the “right” place. Please pray we will find it soon so we can get our White Star group going.

Then, just last week, I had an excellent, in-depth phone call with a WHI alum living about 250 miles away at Rochester, NY. He feels led to be a bridge to the healing of other combat Veterans and is praying about forming a CSR group based on his church. He said to me,

“Just yesterday day I was reading about Moses in Exodus 18. He wasn’t sure how he could cope with the huge task of leading the Israelites. Then his father-in-law, Jethro, came along and gave him some good advice how to make his life more bearable. I feel strongly led to help Veterans but I felt I needed a Jethro to advise me. Then you phoned! This is an answer to my prayers!”

This new situation encourages me that the Holy Spirit is at work and I’m expectantly anticipating what might come about for combat Veterans in Rochester! Pray this CSR group into active existence with me!

The increased activity schedule for this year led me to submit a larger budget to ACCTS for this fiscal year (Oct-Sep) than several previous. I estimated an additional $15,000 was needed for the calendar year. It’s a huge amount and I have no idea where it’s coming from or how the LORD is going to provide it – or if He will. I’m stepping out in faith knowing that if all the plans the Holy Spirit has laid on my heart are even half achieved, God clearly will have provided for them and no-one else!

I estimate we need $10,000 of the $15K to the end of September. I’m putting 10% of this from our own resources. As always, we will adjust ministry activity levels and how we do the ministry according to available resources. And we will have faith that we can cope with the extra we need for medical hotel bills, mentioned by Meryl earlier. Please pray in the extra resources needed to minister in the ways the Lord calls us, in particular, $1500 in each of February, March, $2000 in April and $3000 in May. Meeting these targets gives me the cash flow to buy “capital cost” air tickets far enough ahead to get them at lower prices.

In closing I wanted to share with you the words of a Christmas card received from a combat Veteran a few weeks ago:

“I appreciate all that you have done for us Veterans at the Welcome Home Initiative. I enjoyed the fellowship and friendship and the whole experience. Thank you for the quilt as well – it is very nice and well put together. I hope the thanks can reach the person for making it. Thank you for everything and hope you have a blessed holiday season and hope to see you all again next year.”

(Meryl obtains, selects and allocates the quilts for the Greenwich retreats, the last ones were all made locally.. the request for Quilts was so well received that we have enough already made for the Veteran’s attending our next retreat. )

As always we love hearing for you and catching up on your news…. and thank you for all your prayers, love and support…

Boston and more… August 20th 2015

“The Lord has done great things for us and we are glad” Psalm 126:3

The summer seems to be going very fast. Time goes quickly the older you get, they say, and this certainly seems true this year. August is over half way through and summer officially ends in 2 weeks, although we hope for lots more sunny days well into the Fall.

2015 Greenwich Relay for Life

We are in Boston today for Noel’s appointments at the Dana Farber Cancer Institute (more detail in the next but one paragraph), but a week today, Thursday, August 27th, Noel flies to Orlando, Florida, to take part in a Chaplain’s ministry healing conference organized by the Diocese of Endorsed Chaplains of the Communion of Evangelical Episcopal Churches (CEEC). Many armed forces chaplains are gathering to be equipped, motivated and educated how to be “compassionately focused on mending wounded souls.”

Our very close friend, Reverend Nigel Mumford, is one of the key speakers and Noel is going to support him; pray as a member of his team; and to make contact with military Chaplains for future ministry activities. We asked for prayer about Homeland 2015 in our last update on July 23 and since then have received $550 in donations towards the $1200 cost of going. Noel feels so strongly that he is meant to be at this event that he has organized to go even though we don’t know how the rest of the costs are to be covered. This is a faith venture and we really need you, our dear readers, to pray the Lord will bless abundantly enough to cover the costs, as well as provide the other 2/3 balance still being paid for the July ministry activities also described in our July 23rd update. The total need for both faith ventures is $2000. Please bear in mind that the military Christian organization we have been staff members of for the last 21 years, requires it’s staff to raise their own ministry (aka, work) related funds. No money (even donated air miles) comes from any other source other than the “shared vision generosity” of individuals and, very occasionally, church or chapel designated offerings or missionary activity sponsorship. Even the smallest donation helps Chaplains and combat Veterans whose souls are deeply traumatized with the often hidden or concealed wounds of war and the ‘combat’ of life. All donations, especially for US tax exemption, should be made through ACCTS at http://www.accts.org/donate.html. Click on ‘Donate’ or ‘Give’ for full details. Our title is Chaplain Care Ministry.

We also ask you to pray for a successful conference, for much healing of moral injury to occur, for many new ministry relationships to be established and that these will lead to more healing of combat trauma in the future.

Full details about Homeland 2015 can be found at http://byhiswoundsministry.org/event/military-conference-protecting-our-homeland-heart-soul-for-military-chaplains-orlando-fl/.

Meanwhile, back in Boston yesterday, Dr. Soiffer was pleased to see us and happy that Noel has continued to do well since our last visit 6 weeks ago. His blood counts were acceptable and some mouth sores that formed at the end of last week have now disappeared again. The $300 copay each month for the one medication that Noel uses as a mouth wash seems well worth it to hopefully keep these sores caused by the GVHD away. Dr. S decided to lower the Prednisone (steroid) dose again from 10mg to 7.5mg and said in 4 weeks, if he continues to feel OK, to drop down to 5mg. Hopefully this means that by the end of the year Noel will be completely off steroids again. He has now this year been on then for the past 8 months. So that day will be a big Hallelujah day! Meanwhile, we continue to thank God for improvement!

Noel’s next appointments are scheduled in 6 weeks (Oct 2) including blood tests and an annual lung function test (PFT). We are trusting the PFT will be OK as Noel sometimes finds himself breathing more heavily when doing minor physical activity like climbing stairs, let alone the 2.5 minutes of rowing he does as part of his fitness training! He will also see the Oral Doctor at the Brigham and Women’s Hospital again that same day.

Noel’s recent surgery to remove 3 small cancers from his skin went extremely well. All were caught in very early stages and his nose and chin have healed well. The wound on his leg has been more bothersome and is taking longer to heal but it is progressing and hopefully will not need a dressing on it soon.

Family-wise both sets of grandchildren and their parents have enjoyed summer vacations away from home, Charles, Sarah, Eve and William at the seaside in England; and Toby JoAnn, Charlotte and Lucy on a trip north to New Brunswick, Canada, where they visited JoAnn’s relatives and did sightseeing. A great time making memories was had by everyone.

Now the focus is turning towards everyone getting ready for the new school year. Amazingly all 4 grandchildren will now be in full time Elementary School. Yes, time does fly! Lucy is very excited about traveling to school on the big yellow school bus with Charlotte. Next year Charlotte will move to the Intermediate School so they will then travel on different buses until Lucy, at some stage, will join Charlotte on the bus to High School! Eve and William usually ride their bikes or walk to school which is in their local English village neighborhood.

In our next update we will include details of ministry activities we feel the Holy Spirit is guiding us into in the rest of this year and 2016.

Thank you for continuing to walk along side us on our journey, praying and supporting us. Remember we always love to hear your news and prayer needs too. So please stay in contact with us. God Bless You.

[email protected] and [email protected]

Latest news from Boston and more…

Great is thy faithfulness, new every morning new mercies we see…are the words from our special hymn, sung at our wedding… we are so grateful for all the Lord has done for us.

Since our last visit to Boston a month ago… there has been a dramatic improvement in Noel’s GVHD symptoms. Actually a mystery to the Doctors as to why, very suddenly just about two weeks ago, the sores in Noel’s mouth disappeared and no new ones have developed. We are of course putting it down to the power of prayer and the Lord’s timing.

Doctor Treister is mystified but happy and has told Noel to slowly reduce the frequency of the special mouth wash over the next few weeks to down to once a day. Unless there are any adverse changes Noel will see him again in 3 months. When we mentioned to Dr. T about our belief in the efficacy of prayer he put his hand on Noel’s shoulder and said, “maybe someone reached down and put his hand in your mouth and took the sores and GVHD away!”

Amy, Dr Soiffer’s NP, was equally pleased to see Noel’s mouth looking so very much better. She and Dr S feel that Noel should stay on the 15 mg of prednisone (steroid) for another three weeks before further reducing to 10 mg if all continues to go well. Noel’s next appointment was lengthened to 6 weeks so this is another huge improvement. Next appointment is Wednesday,19th August.

So please keep praying his mouth stays GVHD free; that his swollen feet and ankles continue to reduce – they are still preventing him wearing normal shoes; that the swelling around his face, cheeks and jowls reduce; and that he gains more energy and stays well. Amy gave him the go ahead to travel over the next two weeks but said she wanted him to wear a face mask on the airplane flights. Even though his blood counts are good his immune system is still fragile. His platelets have gone above 100 for the first time in more than 6 months.

So on Thursday we fly to Dayton, Ohio for the Anglican Armed Forces Jurisdiction (aka Diocese) annual training, sustainment and fellowship meeting adjacent to Wright-Patterson Air Force Base. Noel will listen to, show love to and pray for many military Chaplains he knows and also help lead the sessions for Commissioned Lay Chaplains in his capacity as Prior of the Order of St. Martin of Tours, a relatively recently formed and growing community of Lay Chaplains ministering in secular places of work such as VA and other hospitals, hospices, prisons and correctional institutions, as well as pastoral care roles in churches, and for Noel, ministering in the military environment to Chaplains and Veterans.

On Monday, 13 July we fly on to Florida where for a couple of days we will pay short visits to 2 sets of friends in the Orlando/Kissimmee area. We first met both sets over 20 years ago when we all lived in Virginia Beach. From Thursday, July 16-18 we will help lead a Welcome Home Initiative Retreat for at least 10 combat Veterans and 7 spouses at West Palm Beach. We return home on Sunday, 19 July, back to our busy home life and school vacation day care for the girls.

Because ministry is busy this month, let alone into the future, we are writing a second, separate, update this month. Please read it and pray what role you might have in helping to further our ministry vision and activities to the end of this year. We fully believe we have been called to the Chaplain and Veterans ministry by the Lord and that the plans we have are directly from our Father in heaven as we listen to Him and respond to His leading.

So thank you again for following our journey and praying for us. God Bless you all!

Noel’s 3rd Re-birthday. Happy Birthday!

Noel’s 3rd re-birthday… Thursday, June 11th.

2015 Greenwich Relay for Life

Noel, Meryl, and Charlotte
2015 Greenwich Relay for Life

It was a Monday back in 2012 and was the day Noel received the donor cells as the stem cell transplant. On June 12th, we participated RELAY for LIFE! And this evening, our health updates… from Boston and Glens Falls.

This day 3 years ago Noel was in the Brigham and Women’s Hospital in Boston, having undergone intensive chemotherapy to kill his immune system and make his body ready to receive the donor stem cells. These cells would then make their way to his own none functioning bone marrow and take up residence as his new bone marrow and start to manufacture all his blood. The transplant was and is the only possible chance of giving Noel more years to live. The donor cells are still doing a great job, have cured the cancer and are keeping his blood count levels within a normal range. As we thank God for this wonderful blessing of life, we are also incredibly thankful for the amazing gift of life-giving cells from his then unknown, unrelated donor, Ryan. And we are so grateful to have met Ryan and his wife last Fall, much enjoying the evening we had together. As Noel received the cells through the port he had in his chest we asked, “how do these cells know where and how to get to the large bones where the blood is made?” Noel’s eminent oncologist, the head of the stem cell transplant team at Dana-Farber, replied, “we don’t know. We simply don’t have a clue!” So, to us another part of the miracle was that God created the
capability from the beginning for theses cells to ‘know’ exactly where they must go to!

However, those donated cells sometimes really do think they are ‘boss’ and occasionally just try to take over control and reject Noel! This manifests itself as the Graft Versus Host Disease (GVHD) that we often talk about. This has been a long and somewhat difficult year for Noel after catching a nasty respiratory virus back in January, which was the cause of this latest bout of GVHD but at yesterday’s visit to Dr Soiffer at the Dana-Farber things looked brighter as he reduced the dose of steroids by another 5mg…. down to 15mg. Noel was on 40mg each day last January. So hopefully the side effects of weaning off the Prednisone will begin to improve and be less bothersome. The GVHD is still producing mouth sores and the clinical trial Noel has been in for the last month ended yesterday. Testing a medication as a mouth wash seemed to make little significant difference to the sores… so he will now go back to using the mouthwash he was using before. Dr Treister, the oral care doctor, was grateful for Noel’s participation in the trial and will continue to work with Noel to try and find something to help with the sores. The sores are better than they were and are mostly bearable. Although GVHD is very unpredictable, Noel is a lot better than he was 6 months ago..but we know another extreme flare up could happen again. But we pray not. His fatigue comes and goes… but he perseveres on… Next appointments with both doctors are scheduled for one months time.

I had a funny episode myself last week , with terrible chest pains. Although different to when I had the heart attack just 12 months ago. Noel took me to the ER to get checked out. This ended up with a 30 hour stay in the hospital… And lots of tests. Nothing of any
significance showed up. The pain subsided and it remains a mystery… but I have appointments to follow up with my Cardio and PC doctors and a lung doctor… I guess it is best to get everything checked. But I feel OK now…

2015 Greenwich Relay for LifeLast Friday was our now yearly family event RELAY for LIFE… at Greenwich NY… It’s our 6th. We would like to thank everyone who have supported our efforts to raise money for the American Cancer Society… your donations to Charlotte’s Relay Fund will make a difference. Overall it seems that fundraising for the Relay this year has been down…we also found this. But we will continue to try to pay it forward to the American Cancer Society… because we have benefited so much in being able to stay overnight at the excellent ACS owned and run accommodation in Boston almost every time we have needed to be there for Noel’s appointments over the last 3 years. Although Hope Lodge is responsible for raising it’s own operating costs (more than $1M a year), so direct donations are welcomed, there is no charge to stay there (Relay for Life donations go to the wider work of ACS). With this blessing, we have ‘saved’ thousands of dollars that otherwise we would have found it extremely difficult to pay for hotel rooms at the same time as buying some expensive medications even though Noel’s health insurance policy is a very cost-effective one. One day I will sit down and work the ‘savings’ out!

So a big thank you for supporting us and others by supporting the American Cancer Society. You can still donate by visiting Charlotte’s page… Which remains open for the next few days.

Noel adds, ministry over the last month has become rather busier than earlier in the year, as Spring turned to summer. I have been able to listen to, encourage, pray with and have good one-to-one fellowship with the ten or so Chaplains and combat Veterans I count among my friends. I know the Lord blesses me throughout these relationships and, I pray, they also bless my friends. The main ministry event was the annual Convention of the Diocese of Albany. Held at a purpose-built summer vacation camp about 60 miles from home. Meryl and I, with three others, twice presented a workshop informing those attending about the Welcome Home Initiative. It was successful even though attendance was light. Those who came were clearly in the ‘right’ place and we pray they will either come to a retreat on their own or, better still, with a buddy; help finance a scholarship ($300); feel called to help WHI in some other way; and pass the information on to others. The weekend was blessed with sunny weather, many friends whom we had not seen for a while, wonderfully uplifting worship services, especially the Eucharists, and excellent faith deepening and uplifting preaching by the keynote speaker, former Archbishop of Canterbury, George Carey. My testimony of healing, given at Saturday evening’s service of healing, was well received and I was able to pray for and encourage several people who were challenged by differing moral, soul injuries due to combat and other military related traumas. Additionally, as a Lay Chaplain and Prior of the Order of St. Martin of Tours, I have been involved in planning for the annual convocation of the Armed Forces and Chaplaincy Jurisdiction (aka Diocese) of the Anglican Church in North America (ACNA). This included the regular monthly video-telephone conference call to keep in touch with our other Lay Chaplains. Please pray that the fruit of these successful activities will bless us at the convocation from July 9-12 at Wright-Patterson Air Force Base, Ohio. Please also pray for us as we take part in a Welcome Home Initiative at a church in West Palm Beach, Florida from July 16-18, led by our good friend, Rev. Nigel Mumford.

Meryl again, thank you for all your prayers, we know your prayers are being answered, please continue to stay in touch with us, we love hearing your news as well as writing about our own. Both our sons and their families are doing well, no family reunion is planned for this summer but both families have busy summers ahead of them, so please continue to pray for us all.

God bless you and your families as the vacation season gets into full swing.